BURDEN OF FAMILY CAREGIVERS FOR THE CHILDREN WITH MENTAL RETARDATION AT PORT- SAID CITY

Document Type : Original Article

Authors

1 Port said faculty of nursing

2 Professor of Family & Community Health Nursing, Faculty of Nursing – Port-said University Egypt

3 Assistant Professor of Family & Community Health Nursing, Faculty of Nursing - Port Said University Egypt

Abstract

Background: Children with mental retardation require intensive care by parents to optimize their developmental stages such as conducting medical examinations, counseling and coaching. family members are the most important part for children with mental retardation to be able to live their lives well. Aim: to  explore burden of family caregivers for the children of mental retardation  at Port-Said City. Subjects and Method: A descriptive cross-sectional research design was used at the only governmental schools for mental retardation in Port Said and Port Fouad city namely Intellectual Educational schools. Purposive sampling was be used. Two tools used to gather the required data consisted of; Tool (1) Astructured self administer  questionnaire Tool (2) burden scale. Results: The study revealed that(20.0 %) of the studied family caregivers had no burden, followed by (32.2 %) of them had mild burden while (41.7 %) of them had moderate burden, and finally (6.1 %) of the studied family caregivers had sever burden. Conclusion: It can be concluded that about tow fifth of the studied family caregivers had moderate level of burden. Recommendations: Designing and training program to caregivers regarding coping and rehabilitation for their roles to their mentally retarded children. Special financial support should be given to these families to help them to meet extra demands and costs of caring their mental retarded children.
 
 

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References

Ashrafi-Rizi, H., Najafi, N. S. S., Kazempour, Z., & Taheri, B. (2015). Research self-efficacy among students of Isfahan University of Medical Sciences. Journal of education and health promotion, 4(1),305.
Ayalew, M., Workicho, A., Tesfaye, E., Hailesilasie, H., & Abera, M. (2019). Burden among caregivers of people with mental illness at Jimma University Medical Center, Southwest Ethiopia: a cross-sectional study. Annals of General Psychiatr  Journal y, 18(1), 10.                                                        
Chouhan, S. C., Singh, P., & Kumar, S. (2016). Assessment of daily parenting stress and depressive symptoms among parents of children with intellectual disability. International Multispecialty Journal of Health, 2(4), 22-29.       
Clinical Genetic Service Department of Health (2012). Communicating new knowledge on previously reported genetic variants. Genetics in medicine Journal, 14(8), 713-719.                                                                                 ‏      Darsana, G.M., Suresh, V. (2017). Prevalence of caregiver burden of children with disabilities International Journal of Informative & Futuristic Resear, 4(8), 7238-7249.                                                                                      
El-Ganzory, G. S., El Matty, G. M. A., & AbdelRahman, M. (2013). Effect of counseling on patterns of care, stress and life burden on parents of mentally retarded children. Life Science Journal, 10(3), 1850-1857.                             
Frutos, M., Báez, M., Marquez-Gonzalez, H., Jiménez-Marquez, A., & González, H. (2016). Prevalence of burden, family dysfunction and depression in primary caregiver of pediatric patients with disabilities. J Fam Med Dis Prev, 2, 039.                                                                                                   
‏ Given BA, Given CW, Sherwood PRJ (2012). ). Family and caregiver needs over the course of the cancer trajectory. The Journal of Supportive Oncology,  10(2), 57-64.                                                         
Gohel, M., Mukherjee, S., & Choudhary, S. K. (2011). Psychosocial impact on the parents of mentally retarded children in Ananda District. Health line, 2(2), 62.‏
Grant, M., Sun, V., Fujinami, R., Sidhu, R., Otis-Green, S., Juarez, G., ... & Ferrell, B. (2013, July). Family caregiver burden, skills preparedness, and quality of life in non-small-cell lung cancer. In Oncology nursing forum17(12), 1365-1368.
Kamel, H. (2014). Cancer incidence in Egypt: results of the national population-based cancer registry program. Journal of cancer epidemiology,10(1),55.        
Kerenhappachu, M. S., & Sridevi, G. (2014). Care giver’s burden and perceived social support in mothers of children with mental retardation’. International journal of scientific and research publications, 4(4), 1-6.                              
Laskar, A. R., Gupta, V. K., Kumar, D., Sharma, N., & Singh, M. M. (2010). Psychosocial effect and economic burden on parents of children with mental disability. The Indian Journal of Pediatrics, 77(5), 529-533.                       
Maheshwari, K. (2014). Burden of caregivers of mentally retarded children. IOSR Journal of Humanities and Social Science, 19(7), 6-12.                                   
Mohr, W. K. (2013). Psychiatric Mental-Health Nursing. 8th ed. Publisher. Lippincott, Williams, and Wilkins, p781-782.                                                 
Oh, H., & Lee, E. K. O. (2019). Caregiver burden and social support among mothers raising children with developmental disabilities in South Korea. International Journal of Disability, Development and Education, 56(2), 149-167.               ‏
Ray, A (2018). An Assessment of Burden of Care on Parents with Intellectual Disability in Eastern Indian Population. Journal of medical science and clinical research ,6(6),919-922.                                                           
Recio, P., Molero, F., García-Ael, C., & Pérez-Garín, D. (2020). Perceived discrimination and self-esteem among family caregivers of children with autism spectrum disorders (ASD) and children with intellectual disabilities (ID) in Spain: The mediational role of affiliate stigma and social support. Research in Developmental Disabilities, 105, 103,737(2).                            ‏
Reinhard, S. C., Feinberg, L. F., Choula, R., & Houser, A. (2017). Valuing the invaluable: 2015 update. Insight on the Issues journal, 104.                                 Shabo, F. H. (2011). Psychosocial impacts of mentally retarded children on parents in Sudan. Sudan Journal of Medical Sciences, 6(1),1-9.                            Sharma, S., Raina, S. K., Bhardwaj, A. K., Chaudhary, S., Kashyap, V., & Chander, V. (2016). Prevalence of mental retardation in urban and rural populations of the goiter zone in Northwest India. Indian journal of public health, 60(2), 131.                                                                                    
Singh, K., Kumar, R., Sharma, N., & Nehra, D. K. (2014). Study of burden in parents of children with mental retardation. Journal of Indian Health Psychology, 8(2), 13-20.                                                                                  ‏
Singh, T. K., Indla, V., & Indla, R. R. (2018). Impact of disability of mentally retarded persons on their parents. Indian Journal of Psychological Medicine, 30(2), 98-104.                                                                                                 ‏
Sridevi, G(2014). Care Giver’s Burden and Perceived Social Support in Mothers of Children with Mental Retardation. International Journal of Scientific and Research Publications,30(2), 505-510.                                                                             ‏
To’meh, H. (2013). Family Burden among Caregivers of Mentally ill Patients in Nablus District (Doctoral dissertation).
Turan Gürhopur, F. D., & Dalgıç, A. İ. (2017). Family burden among parents of children with intellectual disability. Journal of Psychiatric Nursing, 8(1), 9-16.‏
World Health Organization. (2015). World health statistics 2015. World Health Organization journal, Pp 161-161.
Zarit, S. H., Anthony, C. R., & Boutselis, M. (1987). Interventions with caregivers of dementia patients: comparison of two approaches. Psychology and aging journal, 2 (3), 225.   

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