Quality Of Life Among Leprosy Patients

Abd EL-Rahman, Nesma Mohamed Faheem; Abou EL-Matty, Gehad Mohamed; Mohamed Gida, Naglaa Ibrahim; Ramadan ELkholy, Abdel El-Nasser

doi:10.21608/pssjn.2021.182050

Quality Of Life Among Leprosy Patients

Document Type : Original Article

Authors

¹ Family and Community Health Nursing

² Professor of Family and Community Health Nursing, Faculty of Nursing, Port said University

³ Family and Community Health Nursing ,Faculty of Nursing, Port said University

⁴ M.D. Dermatology and Venereology, El Mansoura Dermatology and Leprosy Hospital

10.21608/pssjn.2021.182050

Abstract

Background: Leprosy is caused by mycobacterium leprae and spread among those living in poverty. stigma has been associated with leprosy. Aim: Assess quality of life among leprosy patient. Subjects and method: .Design: A descriptive cross-section design was adopted on the current study .Setting: This study was carried out Hospital of Dermatology, Venereal and leprosy in Dakahelia Governorate. Subjects: A purposive sample was used to this study and compromised of 325. Tool: Two tools were utilized to collect necessary data in this study. Tool I, Structured interview. Tool II, the World Health Organization Quality of Life (WHOQOL) –BREF. Results: The present of study showed that, more than half of leprosy patients (55.4%) rated their quality of life as very poor. most of leprosy patients had a poor knowledge (99.7%) and had negative attitudes toward leprosy. And also there are appositive statically significant relation between four domain of quality of life, age ,and family number. Conclusions: Majority of leprosy patients were not working, low education stander and living in rural area, most of leprosy patients had a poor knowledge and had negative attitudes toward leprosy. Recommendations: contagious training program about leprosy for leprosy patients through visual aids such as posters and clear language booklets to improve their knowledge.

Keywords

Main Subjects

Community Health Nursing

References

Bello, A. I., Dengzee, S. A., & Iyor, F. T. (2013). Health related quality of life amongst people affected by leprosy in South Ghana: a needs assessment.‏

Blackwell, J.M., Jamieson, S.E., &Burgner, D. (2009): HLA and infectious diseases. Clin Microbiol Rev; 2(2): 370–85.

Briden, A. N. I. T. A., & Maguire, E. (2014). An assessment of knowledge and attitudes towards amongst leprosy/Hansen's disease workers in Guyana. Leprosy review, 74(2), 154-162.‏

Earla, P. (2015): Long lasting disease: Leprosy. J Infect Dis Ther; 3(9):77-87.

Hegazy, A., Abdel-Hamid, I., Ahmed, E., Hammad, S., &Hawas, S. (2002): Leprosy in a high-prevalence Egyptian village: epidemiology and risk factors. International Journal of Dermatology; 41(10): 681-686.

Geetha,K., Dhanalakshmi,A.,&Judie,A.(2015): A study to assess the impact of leprosy on quality of life among leprosy patients’ in government rehabilitation homer at Paranur .International Journal of Pharmaceutical and Clinical Research ,7(6),466-468.

Mason, R. D., Lind, D. A., & Marchal, W. G. (1999). Statistical techniques in business and economics. The Irwin/TheMcGraw-Hill series operations and decision sciences.‏

Mathews, B., Birhan, W., &Kinfe, S.(2013): Assessment of knowledge, attitude and practice towards post exposure prophylaxis for HIV among health care workers in Gondar, North West Ethiopia. BMC Public Health; 13: 508-515.

Msyamboza KP, Mawaya LR,& Kubwalo HW(2013): Burden of leprosy in Malawi: community camp-based cross- sectional study. BMC International Health and Human Rights,; 12 ( 12) 845-850

Ngan, V. (2014): Leprosy .Derm Net. Available at: http://dermnetnz.org/bacterial/leprosy.html

Nunzi, E., & Noto, S. (2008). Observing the skin: papules and nodules in leprosy. Lepr Rev, 79(118), 678.‏

Reis, F. J., Cunha, A. J. L. A., Gosling, A. P., Fontana, A. P., & Gomes, M. K. (2013). Quality of life and its domains in leprosy patients after neurolysis: a study using WHOQOL-BREF. Lepr Rev, 84(2), 119-23.‏

Salgado, C. G., & Barreto, J. G. (2012). Leonine Facies: Lepromatous Leprosy. New England Journal of Medicine, 366(15), 1433.‏

Sawafta, F.J., & Chen, X.(2013): Quality of life of Chinese heart failure patients and their family caregivers. International Journal of Applied Science and Technology; 3(2):18-32.

Sengupta U (2016).Hansen's Disease (Leprosy) Transmission" Journal of Educational Sciences 3(3)15-18.

Al-Sieni, A. I., Al-Layati, W. Z., & Al-Abbasi, F. A. (2013). Temporal adverse effects in leprosy Saudi patients receiving multidrug therapy. Clin Exp Pharmacol, 4, 1.‏

Statistical department(2017): Hospital of Dermatology ,Venereal and leprosy in Dakahelia Governorate.

Tiwari, M., Ranabhat, S., & Maharjan, S. (2015). Clinico-histopathological correlation of leprosy: A retrospective study of skin biopsy specimens in Chitwan Medical College. International Journal of Medical Science Research and Practice, 2(1), 8-11.‏

Vick, G.L., Tillman, E.A., &Fiala, K.H. (2015): Leprosy in a Texan. Proc; 28(2): 231–232.

Weng, X., Vander Heiden, J., Xing, Y., Liu, J., & Vissa, V. (2011). Transmission of leprosy in Qiubei County, Yunnan, China: insights from an 8-year molecular epidemiology investigation. Infection, Genetics and Evolution, 11(2), 363-374.‏

World Health Organization (2012)₂: Program managers’ meeting on leprosy elimination, Cairo, Egypt. Available at:

http://apps.who.int/iris/bitstream/10665/116159/1/IC_Meet_Rep_201214816_EN.pdf?ua=1

World Health Organization (2014)₁: symptoms of leprosy Available at:

https://www.who.com/health/leprosy#symptoms

World Health Organization (2014)₂: symptoms of leprosy Available at:

https://www.who.com/health/leprosy#dignosis

World Health Organization (2017): Prevalence of leprosy. Available at: http://www.who.int/ mediace Feb 2017.