Effect of Maternal Practices Educational Program on Quality of Life for Their Epileptic Children

Document Type : Original Article

Authors

1 Pediatric Nursing, Faculty of Nursing, Port Said University, Port Said, Egypt

2 Professor of Pediatric Nursing, *** Professor of Pediatric Nursing, Faculty of Nursing - Port said University

3 Professor of Pediatric Nursing,Faculty of Nursing - Port said University

4 Assistant Professor of Pediatric Nursing, Faculty of Nursing - Port said University

Abstract

Background: The epilepsy plays major problems around the world due to poor knowledge of the caregivers. There is a need for creation of awareness about the epilepsy among the caregivers. Aim: The present study aims to; study effect of maternal practices educational program on quality of life for their epileptic children. Subjects and Methods: A quasi-experimental research design was used to conduct the study at El-Arab health unit in Port Said city. A convenient sample of 80 mothers and their epileptic children was included in the study. Children's age ranged from 6-12 years.Tools Three tools were used for collecting data consisted of; (1) A­ structured interviewing sheet include personal characteristics of epileptic children and their mothers, and medical history, (2) Mothers practices questionnaire sheet, (3) Quality of life (QOL) sheet. Results: the current study revealed that the most of the studied mothers (80%) had adequate practice after implementation of the intervention, there was statistically significant difference between before and after implementation of the program with p-value whereas (P=0.000), and (63.7%) of the studied epileptic children had good quality of life after intervention. Conclusion: the educational intervention had a positive effect on the epileptic children’s mothers’ practices which improve their children quality of life. Recommendations: provide supportive educational interventions to support epileptic child and his/her family in all quality life domains and increase awareness of epileptic children's mothers and care givers about care practices regarding epilepsy and existing resources in Egypt.

Keywords


AbdAllah, A. M., Sharafeddin, M. A., & Ghonemi, N. A. (2019). Burden of epilepsy on adolescents and their families in Zagazig University hospital.“A cross sectional study”. Kasr Al Ainy Medical Journal25(3), 104.
Akbas, Y., & Kartal, S. (2022). An evaluation of the knowledge, attitudes, and behaviors of parents regarding epilepsy. Epilepsy & Behavior, 129, 108621.
Ayar, D., Ünalp, A., Bektaş, M., Yılmaz, Ü., Karaoğlu, P., & Yalçıntuğ, F. M. (2022). Psychometric properties of a Turkish version of the quality of life in childhood epilepsy questionnaire. Journal of Pediatric Nursing, 62, 91-97.
Badawy, G., Abusaad, F., & Hashem, S. (2018). Effect of an educational program for adolescents with epilepsy on their quality of life and self-management skills. Mansoura Nursing Journal5(1), 41-53.
Conde-Guzón, P. A., Soria-Martín, C., Cancho-Candela, R., Quirós-Expósito, P., Conde-Bartolomé, P., & Bulteau, C. (2020). Parental report of quality of life in children with epilepsy: A Spanish/French comparison. Epilepsy & Behavior105, 106968.
El-Mouty, S., & Salem, N. (2019). Burden and Quality of Life among. Caregivers to Children with Epilepsy. American Journal of Nursing, 7(5), 817-823.
EL Nabawy Ahmed, G., & Abdelgawad Said, D. (2022). Quality of life of children with epilepsy: Parent prospective. International Egyptian Journal of Nursing Sciences and Research3(1), 318-336.
Hamaad, W. A., & Alseraty, W. H. H. (2019). Impacts of seizure care simulation intervention on mothers of epileptic children efficiency, believes, anxiety and seizure care. American Journal of Nursing Research7(3), 293-300.
Horaib, W., Alshamsi, R., Zabeeri, N., Al-Baradie, R. S., & Wahab, M. M. A. (2021). Quality of life and the perceived impact of epilepsy in children and adolescents in the eastern province of the Kingdom of Saudi Arabia. Cureus13(12), e20305.
Mammas, I. N., & Spandidos, D. A. (2020). [Opinion] The challenge of paediatric epilepsy nursing: An interview with Mrs. Jenny O'Brien, paediatric epilepsy nursing specialist at the Wirral University Teaching Hospital, UK. Experimental and Therapeutic Medicine, 20(6), 1-1.
Nagarajan, S. (2018). Assessment of Health-related Quality of Life in Children with Epilepsy using Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-55) . Doctoral dissertation, JKK Nattraja College of Pharmacy, Komarapalayam).
Nashaat, N. A. M., El-Ghany, A., Mustafa, G., Mahmoud, S. F., El Sebaie, S. R., AbdelrhmanAlhanafy, S., & Mohamed, E. S. H. (2022). Effect of nursing intervention program on mothers' knowledge, practice and attitudes toward management of their children with epilepsy and intellectual disability. Tanta Scientific Nursing Journal25(2), 198-216.
Olusanya, B. O., Wright, S. M., Nair, M. K. C., Boo, N. Y., Halpern, R., Kuper, H., ... & Global Research on Developmental Disabilities Collaborators (2020). Global burden of childhood epilepsy, intellectual disability, and sensory impairments. Pediatrics, 146(1).
Patel, P., and Moshé, SL. (2020): The evolutionof the concepts of seizures and epilepsy: What’s in a name?. Epilepsia Open, 5 (1): 22–35.
Pachange, P. N., Dixit, J. V., Arjun, M. C., & Goel, A. D. (2021). Quality of life among middle and secondary school children with epilepsy. Journal of Neurosciences in Rural Practice12(03), 490-494.
Saleh, S. H. A., Mohammed, M. E. H., & Abounaji, O. A. (2021). Health related quality of life in Egyptian children and adolescents with epilepsy. The Egyptian Journal of Hospital Medicine85(2), 3772-3777.
Shahin, M. A. H., & Hussien, R. M. (2021). Knowledge, attitude, practice, and self-efficacy of caregivers of children with epilepsy: Impact of a structured educational intervention program. Epilepsy & Seizure13(1), 1-16.
Sidhu, M., Streiner, D., & Ronen, G. (2019). P. 049 Quality of life in children with absence epilepsy. Canadian Journal of Neurological Sciences, 46(s1), S27-S27.
Subki, A. H., Mukhtar, A. M., Al-Harbi, R. S., Alotaibi, A. K., Mosaad, F. G., Alsallum, M. S., & Jan, M. M. (2018). The impact of pediatric epilepsy on children and families: a multicenter cross-sectional study. Clinical Practice and Epidemiology in Mental Health: CP & EMH14, 323.
Wasilewski, A., Serventi, J., Ibegbu, C., Wychowski, T., Burke, J., & Mohile, N. (2020). Epilepsy education in gliomas: Engaging patients and caregivers to improve care. Supportive Care in Cancer28(3), 1405-1409.