Assessment of Thalassemic Children Knowledge about Thalassemia and Iron Chelation Therapy

El-Said Zaghamir, Donia; Hanie El-Kazaz, Rehab; Ahmed Khalil, Amal; Ahmed Elmazahy, Mohammed Mohammed

doi:10.21608/pssjn.2019.66505

Assessment of Thalassemic Children Knowledge about Thalassemia and Iron Chelation Therapy

Document Type : Original Article

Authors

¹ Assist lecturer of pediatric nursing,Faculty of Nursing, Port Said University

² Assistant Professor of Pediatric Nursing Department, Faculty of Nursing, Port Said University

³ Professor of Pediatric nursing Faculty of Nursing, Port said University

⁴ Professor of Pediatric Medicine Faculty of Medicine Elazhar University

10.21608/pssjn.2019.66505

Abstract

Background: Thalassemia is a major inherited public health problem in the Mediterranean area. Aim of this study was to assess children knowledge about thalassemia and iron chelation therapy. Subjects and methods: A descriptive research design was used. A convenient sample was used; it includes 50 thalassemic children on chelation therapy, and their family caregiver.. This study conducted at the pediatrics outpatient department at the Health Insurance Agency Hospital in Damietta city. Tools Two tools used for data collection. An interview questionnaire form to collect data about socio-demographic characteristics for studied children and their caregivers, assessment of knowledge related thalassemia and iron chelation therapy sheet. Results: revealed that, only 26% of children had satisfactory knowledge related thalassemia, and only 12.0% , 26% of the studied children had total satisfactory knowledge related to management of thalassemia and desferal respectively. Conclusion, the study concluded that there is an improvement in the children's knowledge. The study recommended developing frequent educational training programs for children with thalassemia about chelation therapy through updated posters, booklets and brochures and a repeat of this research on a large sample and in various places in Egypt for improving children's knowledge and practice

Keywords

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